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Patient Navigator and Advocacy Training for Gaucher Disease

Examples

A project to train patient navigators and advocates to support individuals with Gaucher Disease, fostering better patient outcomes.

Description

Patients with Gaucher Disease need knowledgeable advocates. This project aims to train patient navigators to fill this crucial role. The Gaucher Disease Support Network trains and supports patient advocates. Dr. Robert Garcia, a specialist in patient advocacy, leads this project. 

Objectives

Train patient navigators for Gaucher Disease
  • Develop training curriculum
  • Conduct training sessions
  • Evaluate training outcomes

Project scope

  • Curriculum development
  • Training sessions
  • Outcome evaluation
  • Long-term support programs

Method

  • Research Methods:Curriculum development and training evaluation
  • Patient Engagement:Feedback from trained navigators
  • Data Collection & Analysis:Training assessment and participant feedback

Metrics

Effective training and positive feedback
  • Number of trained navigators
  • Participant satisfaction

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